'Limitless and without Horizon': Spirituality in EOL care

Early Exits: Spirituality, Mortality, and Meaning In An Age of Medical Assistance In Dying 
David Maginley
Tristan Press, 2025
Softcover, 480 p.
ISBN: 978-0995881136
MSRP: $27.30 USD
Also available: eBook (Kindle)

Where does assisted dying (AD)—also called “medical assistance in dying” or “voluntary assisted dying”—leave the discipline of palliative care? More particularly, what is the place of spirituality and meaning where AD is legalized? The answers to these questions are by no means certain. Such is the seismic shift in perspective. What is certain are two facts: whenever people suffer with serious illnesses, there will always be a place for palliative care; and, equally, an emphasis on spirituality will forever be important given the sheer complexity of human beings, their varied needs, and their rich individuality. 

Canadian David Maginley has provided psychospiritual support to people with life-limiting illnesses and their families for 25 years. In Early Exits he has written a timely and wise reflection on spirituality and meaning in the age of assisted dying. This book is useful for all clinicians working in palliative care, whether or not their jurisdiction has legalized AD. 

Maginley steps back from the AD debate and does not attempt to recanvas it. Rather, his objective is to examine the period leading up to a natural death, a period that AD truncates and stops. The general population may see this period as purely a time of suffering with no redeeming moments. Maginley points out that clinicians working in palliative care know that this is not necessarily true.

A life-limiting illness is simultaneously a physical and spiritual process. For the author, focusing on the former but rarely the latter is a disservice to the complexity of human beings. It narrows the narrative. This book provides a broader view. A view that we who work in palliative care witness daily. 

Too often, spirituality is regarded only from a religious perspective and, in a secular era, is too easily dismissed. Maginley reinforces that the modern view of spirituality in end-of-life care includes, but is not confined to, religious faith: it addresses suffering, fears, relationships, vulnerability, meaning, and reflection. The breadth of spiritual care is limitless and without horizon. 

Maginley looks at this breadth in multiple ways, through medicine, psychology, philosophy, religion, the literature of spirituality, and his own personal experience. He reminds the reader of the remarkable richness of the insights of this most elemental experience. 

In contrasting assisted dying with a natural death, he finds the former “so kind and respectful on one level yet so impoverished and strange on another.” For Maginley, AD is “a medical solution being used to treat a spiritual condition.” Later, he states that AD “provides a solution to a situation that is asking not to be fixed but understood.” Suffering at the end of life may be physical but, in his experience, is more often existential distress. The author provides numerous examples of how he responds to that distress with a combination of patience, curiosity, and compassion, always while providing symptom management. AD provides a different path. For Maginley, it is “a spiritual bypass” that diverts “from deep engagement with the dying to efficient management of the dying.”

The book is an important addition to the growing literature on assisted dying. Maginley has witnessed the periods before and following the introduction of AD and, as such, writes with great experience and insight. By expertly concentrating on the spirituality of dying and the nature of suffering, he challenges the reader to consider these aspects amidst the technical, procedural mechanics of AD. Maginley reminds clinicians of the importance of these considerations, whichever path is chosen. 

Dr. Frank Brennan is a palliative care physician, past president of the Australian and New Zealand Society of Palliative Medicine, a senior lecturer in the Faculty of Medicine, University of New South Wales, and a lawyer. 

Read more of this week's issue of Pallinews

IAHPC news briefs

IAHPC is instituting a new tiered membership fee for institutions to reflect the economic disparity between upper-middle-income and lower-middle-income countries (per the World Bank classification). This action makes membership more affordable for the lower tier.

IAHPC has earned a "Give with confidence" four-star rating by Charity Navigator. IAHPC's overall 97% rating is based on four criteria: it received 89% for its impact & measurement of its impact, and 100% for accountability& finance, leadership & planning, and organizational culture. Charity Navigator is the largest charity evaluator in the United States, and a trusted source of information for donors since 2001.

Plus

Thinking Ahead: In March, the African Palliative Care Association will send out a call for nominations for the first Anne Merriman Excellence in Palliative Care Award. Criteria are now being finalized for this €20,000 award, to be given once every two years to an individual or organization "demonstrating exceptional innovation, compassionate care, research, or long-standing commitment to advancing palliative care in Africa." 

The Foundation for Palliative Care Education has launched a webinar series focused on spiritual support for children. Sign up for its newsletter to receive future alerts. You can now access the first webinar, “What Is Spiritual Support for a Child in Palliative Care?

IAHPC Resources

Free for everyone
Read the report or watch the recording of a January webinar, From Resolution to Reality: Strengthening the WHO ECO Framework for Safe Surgery, Anesthesia, Critical Care, and Pediatric Care," cohosted by the IAHPC.

Free for members
Unable to attend a palliative care conference? Learn the basics about palliative care nursing; pain and symptom management; communication; loss, grief & bereavement; and the final hours in this IAHPC course.

Upcoming Events in the Calendar

Explore the IAHPC calendar of events to find educational events, conferences, and congresses to expand and improve your palliative care skills and knowledge.

...

View Calendar of Events

What's new