Literature Search - Issue No. 8 (Nov 2023)

The primary focus of this literature search is selected articles, etc., on key issues in end-of-life care for which the full text is available online. Added, however, are a few noteworthy articles, etc., but for which access to the full text is available only with a subscription or for a one-time fee for the article in question.1 Also listed are a few postings of special interest on key websites that serve the hospice and palliative care communities-at-large, and selected news media reports. The next listing will be published in approximately four to six weeks.

Articles of particular interest.

Libraries in educational institutions and medical centres may have a subscription to the journal in question and hold a photocopying licence, which may facilitate cost-effective access.

Access to Care

  1. ‘Palliative care need in the Eastern Mediterranean Region and human resource requirements for effective response,’ Plos Global Public Health. Posted online 3 November 2023. Full text
  2. ‘Palliative care in Portugal: From intention to reality, what is yet to be accomplished,’ Nursing Reports. Posted online 23 October 2023. Full text
  3. ‘Assessing awareness and palliative care needs in rural Haryana, North India: A community-based study,’ Cureus. Posted online 15 October 2023. Full text 

    Related:

    News Media Reports: ‘Less than one percent needy get palliative care: Experts,’ The Hindustan Times. Posted online 14 October 2023. Full text; ‘Free palliative care reaching every nook and corner in Telangana,’ Telangana Today. Posted online 10 October 2023. Full text.

  4. ‘Access to palliative and supportive care in the Philippines: A call to action,’ Palliative & Supportive Care. Posted online 11 October 2023. Full text 

    News Media Report: ‘The state of end-of-life care in the Philippines,’ Business Mirror. Posted online 31 October 2023. Full text

  5. ‘Palliative care in the state of Rio de Janeiro (Brazil): Characteristics of the services,’ Journal of Medicine & Life, 2023;16(8):1183-1187. Full text

Education & Training

Nurses

  1. ‘Facing uncertainty: Pilot testing of a palliative prognostic index training with hospital aged care assessment teams,’ Geriatric Nursing, 2023;November-December:211-218. Full text 

    Related:

    1.2 ‘Postgraduate nursing students’ experiences with simulation-based learning in palliative care education: A qualitative study,’ Nurse Education in Practice. Posted online 6 November 2023. Full text

    1.3 ‘Effectiveness of an educational workshop on palliative care knowledge in Lebanese nurses,’ Palliative Medicine Reports. Posted online 30 October 2023. Full text

    1.4 ‘Training nurses to facilitate and implement CURA in palliative care institutions: Development and evaluation of a blended learning program,’ BMC Palliative Care. Posted online 21 October 2023. Full text

    1.5 ‘Death education for undergraduate nursing students in the China Midwest region...,’ Nursing Open. Posted online 12 October 2023. Full text

    1.6 ‘Palliative care in nursing training: Higher education course coordinators’ perception,’ Revista Brasileira de Enfermagem. Posted online 9 October 2023. Full English language text

    1.7 ‘The Death Café: Effectiveness of a hospice care educational program for nursing undergraduates based on life experience – a qualitative study,’ Nurse Education Today. Posted online 5 October 2023. Full text

Physicians et al

  1. ‘Online modules to improve health professionals’ end-of-life law knowledge and confidence: A pre-post survey study,’ BMC Palliative Care. Posted online 31 October 2023. Full text 

    Related:

    2.2 ‘Dying to be better: Outlining the growing benefits of palliative care training in intensive care medicine,’ Journal of the Intensive Care Society. Posted online 25 October 2023. Full text

    2.3 ‘Anthropology and its aftermath: Humanity in medical training,’ Palliative & Supportive Care. Posted online 13 October 2023. Full text

    2.4 ‘The state of undergraduate palliative care education at Austrian medical schools…,’ BMC Palliative Care. Posted online 10 October 2023. Full text

    2.5 ‘Implementation and evaluation of a palliative care training unit for emergency medical services providers,’ Frontiers in Pediatrics. Posted online 27 September 2023. Full text

Family Caregivers

  1. ‘Comparison of palliative care education for family caregivers in high-and-low-income countries: An integrative review,’ Belitung Nursing Journal, 2023;9(5):411-420. Full text (click on pdf icon)

Essential Medicines

Website Posting of Interest: ‘Statement regarding access to controlled medicines in conflict settings,’ International Children’s Palliative Care Network, 2 November 2023

Policy & Practice

  1. ‘Is the U.K. still the best place to die?’ Journal of Geriatric Care & Research. Accessed online 2 November 2023. Full text 

    Website Postings of Interest: ‘Desperate situation faced by family carers in the U.K. is unsustainable,’ eHospice, 6 November 2023: ; ‘Good end-of-life care shouldn’t be left to chance,’ Marie Curie, 30 October 2023.

  2. ‘Palliative care in Ethiopia’s rural and regional health care settings: A qualitative study of enabling factors and implementation challenges,’ BMC Palliative Care. Posted online 17 October 2023. Full text
  3. ‘Enhancing global development of palliative care: Insights from country experts on Atlantis Observatory’s role,’ Journal of Palliative Medicine. Posted online 16 October 2023. Full text 

    N.B. Atlantes Global Observatory of Palliative Care website.

  4. ‘Why should we advocate for better communication policies in healthcare?’ Patient Education & Counseling. Posted online 11 October 2023. Full text
  5. ‘Perceptions and experiences of female nurses when confronted with expressing a conscientious objection towards end-of-life care in Greece,’ BMC Nursing. Posted online 10 October 2023. Full text
  6. ‘Emerging health and social policy considerations for safe and quality end-of-life care in Australia – the evidence, gaps and challenges,’ Australian Health Review, 2023;47(5):586-588. Full text 

    Website Posting of Interest: ‘Emerging health and social policy considerations for safe and quality end-of-life care in Australia – the evidence, gaps and challenges,’ Australian Health Review, 2023;47(5):586-588. Full text

Research (Issues)

  1. ‘Specialty palliative care for adolescents and young adults with cancer: Developmental considerations and an agenda for future research’ JAMA Network Open. Posted online 20 October 2023. Full text
  2. ‘Palliative care integration for patients on phase I cancer clinical trials,’ Current Problems in Cancer. Posted online 16 October 2023. Abstract (w. intro., section snippets, references, etc.):

    Related:

    2.2 ‘Clinical trials in palliative care: Need for serious reckoning,’ JCO Global Oncology. Posted online 12 October 2023. Full text

  3. ‘Balancing burden and benefit: Reflecting on interviews with individuals nearing the end of their lives,’ Palliative & Supportive Care. Posted online 11 October 2023. Full text

Research (Protocols)

  1. ‘Experiences of family members of cancer patients in palliative care: A qualitative systematic review protocol,’ JBI Evidence Synthesis. Posted online 6 November 2023. Full text
  2. ‘Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers,’ F1000Research. Posted online 30 October 2023. Full text
  3. ‘Palliative care needs of people and/or their families with serious and/or chronic health conditions in low- and middle-income country humanitarian settings: A systematic scoping review protocol,’ Usher Institut, University of Edinburgh. Accessed online 10 October 2023. Powerpoint presentation

Of Related Interest

Technology

  1. ‘Clinician perceptions of barriers and facilitators for delivering early integrated palliative care via telehealth,’ Cancers. Posted online 9 November 2023. Full text 

    Related:

    1.2 ‘Virtual reality use and patient outcomes in palliative care: A scoping review,’ Digital Health. Posted online 1 November 2023. Full text

    1.3 ‘Maintaining high-touch in high-tech digital health monitoring and multi-omics prognostication: Ethical, equity, and societal considerations in precision health for palliative care,’ OMICS: A Journal of Integrative Biology. Posted online 18 October. Full text

    1.4 ‘Exploring the impact of a digital counseling tool on family caregivers: An initial program theory based on realist methodology,’ Health & Social Care in the Community. Posted online 14 October 2023. Full text

    Research (Protocol): ‘My virtual home: Needs of patients in palliative cancer care and content effects of individualized virtual reality: A mixed methods study protocol,’ BMC Palliative Care. Posted online 31 October 2023. Full text

Community & Home-Based Palliative Care

  1. ‘Comfort my father, and you comfort me: Family caregivers and the critical role of communication (Part 2 of 2),’ International Association for Hospice & Palliative Care Newsletter. Posted online 9 November 2023. Full text 

    Related:

    2.2 ‘Home care nurses facilitating planned home deaths. A focused ethnography,’ BMC Palliative Care. Posted online 9 November 2023. Full text

    2.3 ‘Navigating an emotional journey: A qualitative study of the emotional experiences of family carers currently supporting people living with motor neurone disease,’ Palliative & Supportive Care. Posted online 8 November 2023. Full text  >

    2.4 ‘Supporting family carers in general practice: a scoping review of clinical guidelines and recommendations,’ BMC Primary Care. Posted online 6 November 2023. Full text

    2.5 ‘Older persons’ perceptions and experiences of community palliative care: A systematic review of qualitative evidence,’ JBI Evidence Synthesis. Posted online 6 November 2023. Full text

    2.6 ‘Home-based care for lesbian, gay, bisexual, transgender, queer or questioning, or another diverse gender identity older adults,’ Clinics in Geriatric Medicine. Posted online 3 November 2023. Key points, definitions and connections, future directions, summary, first page view, references, etc., etc.:

    2.7 ‘Caring for the dead at home: An exploratory study of home deathcare in England,’ Mortality. Posted online 3 November 2023. Full text

    2.8 ‘Essential elements of home-based palliative care model: A rapid review,’ Indian Journal of Palliative Care. Posted online 1 November 2023. Full text

    2.9 ‘Family carer experiences of hospice care at home: Qualitative findings from a mixed methods realist evaluation,’ Palliative Medicine. Posted online 21 October 2023. Full text

    2.10 ‘Home emergency response team for the seriously ill palliative care patient: Feasibility and effectiveness,’ BMJ Supportive & Palliative Care. Posted online 16 October 2023. Full text

    2.11 ‘Mutual support between patients and family caregivers in palliative care: A qualitative study,’ Palliative Medicine. Posted online 13 October 2023. Full text

    2.12 ‘Contemplating a “home” at the end of life’s journey,’ The Irish Medical Times. Posted online 11 October 2023. Full text

    2.13 ‘Specialist palliative care until the very end of life: Reports of family caregivers and the multiprofessional team,’ BMC Palliative Care. Posted online 10 October 2023. Full text

    Website Postings of Interest: ‘Supporting families and providing end-of-life-care,’ The Royal Australian College of General Practitioners, 1 November 2023; ‘Percentage of end of life spent at home or in a community setting,’ Public Health Scotland, 10 October 2023.

    News Media Report: ‘Empowering home care nurses: Enhancing palliative care at home,’ Inside Ageing. Posted online 13 October 2023. Full text

Fostering Gratitude in Palliative Care

  1. ‘“Thank you for loving me”: A qualitative study on perceptions of gratitude and their effects in palliative care patients and relatives,’ Palliative Medicine. Posted online 9 November 2023. Full text

Hospital Hospice & Palliative Care Services

  1. ‘Measurement and documentation of quality indicators for the end-of-life care of hospital patients a nationwide retrospective record review study,’ BMC Palliative Care. Posted online 8 November 2023. Full text 

    Related:

    4.2 ‘Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures...,’ Palliative Medicine. Posted online 3 November 2023. Full text

    4.3 ‘Provision of hospice services by critical access hospitals: Strengths and challenges,’ Flex Monitoring Team (University of Minnesota, University of North Carolina at Chapel Hill & University of Southern Maine). Accessed online 31 October 2023. Full text

Pediatric palliative care

  1. ‘Pediatric palliative care In Canada,’ Current Problems in Pediatric & Adolescent Health Care. Posted online 8 November 2023. Abstract (w. intro., section snippets, references, etc.): 

    Related:

    5.2 ‘Developing competencies for volunteer navigators to support caregivers of children living with medical complexity: A mixed-method e-Delphi study,’ Palliative Care & Social Practice. Posted online 8 November 2023. Full text

    5.3 ‘Paediatric palliative care around the world: Malaysia,’ Current Problems in Pediatric & Adolescent Health Care. Posted online 7 November 2023.Abstract (w. intro., section snippets, references, etc.)

    5.4 ‘Realities and ideals: Experiences and needs of pediatric oncology nurses in communication processes with children and their families at the end-of-life period...,’  Nursing & Health Sciences. Posted online 6 November 2023. Full text

    5.5 ‘Preparing for death while investing in life: A narrative inquiry and case report of home-based paediatric palliative, end-of-life, and after-death care,’ Children. Posted online 2 November 2023. Full text

    5.6 ‘Implementing palliative care, based on family-centered care, in a highly complex neonatal unit,’ Jornal de Pediatria. Posted online 29 October 2023. Full English language text

    5.7 ‘Changes in the end-of-life process in patients with life-limiting diseases through the intervention of the pediatric palliative care team,’ Journal of Clinical Medicine. Posted online 18 October 2023. Full text

    5.8 ‘Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation,’ Palliative Medicine. Posted online 18 October 2023. Full text

    5.9 ‘Early and often: Promoting early integration of pediatric palliative care for seriously ill children with cancer,’ Current Problems in Cancer. Posted online 16 October 2023. Abstract (w. intro., section snippets, references, etc.)

    5.10 ‘Providing care for siblings of children on hospice,’ Palliative & Supportive Care. Posted online 11 October 2023. Full text

    5.11 ‘Innovative communication approaches for initializing pediatric palliative care: Perspectives of family caregivers and treating specialists,’ BMC Palliative Care. Posted online 10 October 2023. Full text

    Website Postings of Interest: ‘FamPalliNeeds – needs of families with children and young people with life-limiting illnesses,’ Humboldt-Universität zu Berlin, 10 October 2023 (report in German – click on pdf icon); ‘New supports for paediatric palliative care in schools,’ Palliative Care Australia, 10 October 2023.

Death Doulas

  1. ‘Experiences of engaging a death doula: Qualitative interviews with bereaved family members,’ Palliative Care & Social Practice. Posted online 8 November 2023. Full text 

    Related:

    News Media Reports: ‘As a death doula and professor who teaches about dying, I see a need for more conversations about death,’ The Conversation. Posted online 5 November 2023. Full text; ‘Latine death doulas excavate ancestral practices to support the living and the dying,’ Research29. Posted online 2 November 2023. Full text

Care Planning & Serious Illness Conversations

  1. ‘Breaking the cycle: Using serious illness communication to optimize care transition planning in serious illness,’ Journal of the American Medical Directors Association. Posted online 7 November 2023.Abstract (w. intro., section snippets, references, etc.)

    Related:

    7.2 ‘Talking about dying and death: Essentials of communicating about approaching death from the perspective of major stakeholders,’ Palliative & Supportive Care. Posted online 6 November 2023. Full text

    7.3 ‘Conversations on death and dying: Exploring performance as a prompt,’ Palliative Care & Social Practice. Posted online 1 November 2023. Full text

    7.4 ‘“I don’t see the whole picture of their health”: A critical ethnography of constraints to interprofessional collaboration in end-of-life conversations in primary care,’ BMC Primary Care. Posted online 28 October 2023. Full text

    7.5 ‘A systematic review of the effects of advance care planning interventions in nursing homes,’ Journal of American Medical Directors Association. Posted online 28 October 2023. Abstract (w. intro., section snippets, references, etc.)

    7.6 ‘Translation, adaptation, and validation of the Swedish Serious Illness Conversation Guide,’ Journal of Palliative Care. Posted online 27 October 2023. Full text

    7.7 ‘When and how to discuss about palliative care and advance care planning with cancer patients: A mixed-methods study,’ Palliative & Supportive Care. Posted online 27 October 2023. Full text

    7.8 ‘Using the Kipling method to explore the contextual factors of decision-making during advance care planning for older cancer patients, their family, and health-care professionals: A qualitative secondary analysis,’ Palliative & Supportive Carer. Posted online 20 October 2023. Full text

    7.9 ‘Perceptions, attitudes, and knowledge toward advance directives: A scoping review,’ Healthcare. Posted online 18 October 2023. Full text

    7.10 ‘Development and validation of a subjective end-of-life health literacy scale,’ Plos One. Posted online 13 October 2023. Full text

    7.11 ‘Qualitative analysis of expressions used in the end-of-life discussions and their associated factors,’ Palliative & Supportive Care. Posted online 11 October 2023. Abstract (w. references)

    7.12 ‘The impact of advance care planning on healthcare professionals’ well-being: A systematic review,’ Journal of Pain & Symptom Management. Posted online 10 October 2023. Full text

    7.13 ‘User appraisal of a booklet for advance care planning in multiple sclerosis: A multicenter, qualitative Italian study,’ Neurological Sciences. Posted online 10 October 2023. Full text

    7.14 ‘Motivational interviews to enhance advance care plans in older adults…,’ BMJ Supportive & Palliative Care. Accessed online 9 October 2023. Full text

Neuropalliative Care

  1. ‘Experiences of hospice dementia care: A qualitative study of bereaved carers and hospice clinicians,’ Plos One. Posted online 6 November 2023. Full text 

    Related:

    8.2 ‘A comparison of four dementia palliative care services using the RE-AIM framework,’ BMC Geriatrics. Posted online 19 October 2023. Full text

    8.3 ‘Good death for people living with dementia: A qualitative study,’ BMC Geriatrics. Posted online 16 October 2023. Full text

    8.4 ‘The “surprise question” for prognostication in people with Parkinson’s disease and Related disorders,’ Journal of Pain & Symptom Management. Posted online 13 October Abstract (w. intro., section snippets, references, etc.)

    8.5 ‘Unique characteristics of end-of-life hospitalizations in Parkinson’s disease,’ Frontiers in Aging Neuroscience. Posted online 12 October 2023. Full text

    8.6 ‘Needs assessment and the identification of palliative care dimensions of the essential service package for the elderly with Alzheimer’s disease: A mixed exploratory study,’ Florence Nightingale Journal of Nursing. Posted online 11 October 2023. Full text (click on pdf icon)

    8.7 ‘Neuropalliative care for stroke providers,’ Stroke. Posted online 10 October 2023. First page view

    Website Posting of Interest: ‘Reducing suffering for people living with neurological illnesses and their family carers,’ European Association for Palliative Care, 10 October 2023

Bereavement & Grief

  1. ‘Etiquette in the context of death and dying: Communication and conversation,’ Omega – Journal of Death & Dying. Posted online 3 November 2023. Full text 

    Related:

    9.2 ‘The integrated process model of loss and grief: An interprofessional understanding,’ Death Studies. Posted online 26 October 2023. Full text

Specialist Palliative Care

  1. ‘Specialist palliative care and health care costs at the end of life,’ PharmacoEconomics. Posted online 1 November 2023. Full text 

    Related:

    10.2 ‘Evaluating a specialist palliative care service in a community setting,’ British Journal of Healthcare Management. Posted online 9 October 2023. Full text

Intensive Care Medicine

  1. ‘Barriers and facilitators to end-of-life care in the adult intensive care unit: A scoping review,’ International Journal of Africa Nursing Sciences. Accessed online 31 October 2023. Full text 

    Related:

    11.2 ‘The impact of religion on changes in end-of-life practices in European intensive care units: a comparative analysis over 16 years,’ Intensive Care Medicine. Posted online 9 October 2023. Full text

    Website Postings of Interest: ‘Providing primary palliative care in the ICU,’ American Association of Critical Care Nurses, 19 October 2023; ‘End-of-life care in ICU: The invisible patient,’ European Association for Palliative Care, 17 October 2023.

Oncology

  1. ‘What is an “early palliative care” intervention? A scoping review of controlled studies in oncology,’ Cancer Medicine. Posted online 30 October 2023. Full text 

    Related:

    12.2 ‘Meaning of life therapy: A pilot study of a novel psycho-existential intervention for palliative care in cancer,’ Omega – Journal of Death & Dying. Posted online 26 October 2023. Full text

    12.3 ‘Barriers, blocks, and barricades: Disparities to access of palliative care in cancer care,’ Current Problems in Cancer. Posted online 17 October 2023. Abstract (w. intro., section snippets, references, etc.)

    12.4 ‘Bridging the gap: Palliative care integration into survivorship care,’ Current Problems in Cancer. Posted online 15 October 2023. Abstract (w. intro., section snippets, references, etc.)

    12.5 ‘Creating a culture for change: Lessons from behavioral economics and complexity science to increase serious illness conversations for patients with cancer,’ Current Problems in Cancer. Posted online 15 October 2023. Abstract (w. intro., section snippets, references, etc.)

    12.6 ‘Knowledge of palliative care and barriers to access among outpatients with cancer,’ Journal of Pain & Symptom Management. Posted online 15 October 2023. Abstract (w. intro., section snippets, references, etc.)

    12.7 ‘The integration of palliative care with oncology: The path ahead,’ Annals of Palliative Medicine. Posted online 11 October 2023. Full text

    12.8 ‘Availability of family caregiver programs in U.S. cancer centers,’ JAMA Network Open. Posted online 11 October 2023. Full text

Trauma-informed palliative care

  1. ‘Trauma-informed palliative care is needed: A call for implementation and research,’ Palliative Medicine. Posted online 30 October 2023. Full text

COVID-19

  1. ‘Psychosocial burdens in palliative care: A longitudinal cohort study in nursing homes and impacts of the COVID-19 pandemic,’ BMC Palliative Care. Posted online 28 October 2023. Full text 

    Related:

    14.2 ‘Balancing pandemic public health restrictions and family support at the end of life: Palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic,’ BMC Palliative Care. Posted online 27 October 2023. Full text

    14.3 ‘“Palliative care is so much more than that”: A qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic,’ Frontiers in Public Health. Posted online 25 October 2023. Full text

    14.4 ‘Barriers to and facilitators of advance care planning implementation for medical staff after the COVID-19 pandemic: An overview of reviews,’ BMJ Open. Posted online 10 October 2023. Full text

Cultural and Spiritual Beliefs & Practices

  1. ‘Spiritual care from the perspective of family caregivers and nurses in palliative care: A qualitative study,’ BMC Palliative Care. Posted online 26 October 2023. Full text 

    Related:

    15.2 ‘A peaceful passage: Enhancing end-of-life care for elderly patients through cultural and spiritual awareness,’ Current Medical Issues. Posted online 20 October 2023. Full text

    15.3 ‘“What it is like to be human”: The existential dimension of care as perceived by professionals caring for people approaching death,’ Palliative & Supportive Care. Posted online 20 October 2023. Full text

Geriatric Medicine

  1. ‘Enriching lives: Geriatricians’ mission of supportive care for older persons,’ Geriatrics. Posted online 26 October 2023. Full text

Compassionate Communities

  1. ‘The compassionate communities connectors program...,’ Palliative Care & Social Practice. Posted online 26 October 2023. Full text 

    Related:

    17.2 ‘End-of-life care at home as a therapeutic landscape within a compassionate communities approach,’ Progress in Palliative Care. Posted online 23 October 2023. Full text

    17.3 ‘The role and contribution of compassionate communities,’ The Lancet. Posted online 13 October 2023. Login for free access to full text at

    News Media Reports: ‘Embracing compassionate communities: A collective journey in palliative care,’ The Business Standard. Posted online 14 October 2023. Full text; ‘Compassionate communities: Together for palliative care,’ The Hindustan Times. Posted online 14 October 2023. Full text.

Dignity Care

  1. ‘Grasping a new approach to older persons’ dignity: A process evaluation of the Swedish Dignity Care Intervention in municipal palliative care,’ Scandanavian Journal of Caring Sciences. Posted online 26 October 2023. Full text

Palliative Care Documentation

  1. ‘POMSNAME: An aide-mémoire to improve the assessment and documentation of palliative care – a longitudinal project,’ BMC Palliative Care. Posted online 21 October 2023. Full Text

Medical Interpreters in Palliative Care

  1. ‘The roles and experiences of medical interpreters in palliative care...,’ Palliative & Supportive Carer. Posted online 20 October 2023. Full text

General Practice

  1. ‘Does general practice have a future in palliative care within the health system?’ Irish Medical Times. Posted online 18 October 2023. Full text

Professional Issues (Burnout & Moral Distress)

  1. ‘Decreasing nurses’ anxiety about pediatric end-of-life care with simulation,’ The Journal of Continuing Education in Nursing. Posted online 17 October 2023. Full text 

    Related:

    22.2 ‘Burnout and quality of life in Portuguese healthcare professionals working in oncology and palliative care: A preliminary study,’ BMC Palliative Care. Posted online 13 October 2023. Full text

    22.3 ‘Adaptation and validation of the Brazilian version of the Measure of Moral Distress for Healthcare Professionals in the context of palliative care,’ BMC Palliative Care. Posted online 11 October 2023. Full text

    22.4 ‘Self-care methods of social workers working in end-of-life care,’ Aotearoa New Zealand Social Work, 2023;35(3):89-100. Full text (click on pdf icon)

Nursing

  1. ‘Registered nurses’ beliefs about end-of-life care: A mixed method study,’ Nursing Open. Posted online 16 October 2023. Full text

Racial Disparities in Hospice & Palliative Care

  1. ‘Clinically informed machine learning elucidates the shape of hospice racial disparities within hospitals,’ NPJ Digital Medicine. Posted online 12 October 2023. Full text 

    Related

    News Media Reports: ‘Black ownership provides a different perspective on hospice care,’ The Michigan Chronicle. Posted online 10 October 2023. Full text; ‘A Black-owned hospice care service wants to address racial disparities but can’t operate in North Carolina,’ WCNC-TV News. Posted online 7 October 2023. Full text (w. video clip)

Palliative Care for Immigrants & Refugees

  1. ‘Addressing health disparities: Palliative care for migrants and refugees in the Eastern Mediterranean Region,’ Asia-Pacific Journal of Oncology Nursing. Posted online 11 October 2023. Full text

Website Postings of Interest

India

  1. ‘The healing power of presence: A simple act of sitting beside a patient,’ eHospice, 3 November 2023

Canada

  1. ‘New report from the Canadian Cancer Society reveals nearly all provinces and territories in Canada lack adequate number of hospice beds,’ 1 Canadian Cancer Society, 25 October 2023 
    1. ‘Analyzing Hospice Palliative Care Across Canada: A report on federal, provincial, territorial and community actions.’ Download at

U.K.

  1. ‘Hospice Thought Leadership Series: Health inequalities shaping hospice care,’ Hospice UK, 17 October 2023 

    Related:

    4.2 ‘Palliative and end-of-life care strategy for adults in Jersey launched,’ 1 Jersey Hospice Care, 9 October 2023

    1. ‘A Palliative and End-of-Life Care Strategy for Adults in Jersey 2023-26.’

    4.3 ‘We’re tackling inequalities with an ambitious new strategy and look,’ St. Christopher’s Hospice, 6 October 2023

Selected News Media Reports

U.S.A.

  1. ‘President Carter’s many months on hospice highlight a surprising truth,’ Colorado Newsline. Posted online 27 October 2023. Full text
  2. ‘Can reimagined hospice combine medical care with support In dying?’ Forbes. Posted online 23 October 2023. Full text