Literature Search: Issue No. 1 (March 2023)

The primary focus of this literature search is selected articles, etc., on key issues in end-of-life care for which the full text is available online. Added, however, are a few noteworthy articles, etc., but for which access to the full text is available only with a subscription or for a one-time fee for the article in question.1 Also included are a few postings of special interest on key websites that serve the hospice and palliative care communities-at-large, and selected news media reports. The next listing will be published in two months.

Libraries in educational institutions and medical centres may have a subscription to the journal in question and hold a photocopying licence, which may facilitate cost-effective access.

Access to Care

  1. ‘“I can’t make all this work”: End-of-life care provision in natural disasters: A qualitative study,’ BMC Palliative Care. Posted online 10 March 2023. Full text

    Related:

    ‘Aid when “there is nothing left to offer”: Experiences of palliative care and palliative care needs in humanitarian crises,’ Plos Global Public Health. Posted online 1 February 2023. Full text

  2. ‘Integrating palliative care into oncology care worldwide: The right care in the right place at the right time,’ Current Treatment Options in Oncology. Posted online 10 March 2023. Full text
  3. ‘WHO Pandemic Preparedness Treaty needs palliative care!’ Posted on eHospice 9 March 2023. Full text
  4. ‘Challenges experienced by general practitioners when providing palliative care in the UK: A systematic qualitative literature review,’ British Journal of General Practice. Posted online 27 February 2023. Full text
  5. ‘Unmet palliative care service needs: A patient-centred metric,’ BMJ Supportive & Palliative Care. Posted online 22 February 2023. Full text
  6. ‘Trans and gender diverse communities’ access to and experiences of palliative and end-of-life care,’ Hospice UK. Posted online 20 February 2023. Access Hospice UK report at
  7. ‘Assessing the need for pediatric palliative care in the six Arab Gulf Cooperation Council countries,’ Palliative Medicine Reports. Posted online 16 February 2023. Full text
  8. ‘International cooperation in the alleviation of human suffering,’ Clinical Images & Case Reports Journal. Posted online 15 February 2023. Full text
  9. ‘Quality of dying and death of patients with cancer in hospice care in Uganda,’ JCO Global Oncology. Accessed online 14 February 2023. Full text

    Related:

    ‘One step at a time: Using compassionate communities’ model (COMPASS Ghana) to impact on the delivery of palliative and end-of-life care in resource-poor setting,’ BMJ Supportive & Palliative Care. Posted online 10 February. Conference abstract (w. references)

    N.B. University of Lancaster press release

    ‘Navigating the uncharted terrain: A review of palliative care services in Africa,’ Journal of Palliative Care & Medicine. Posted online 30 January 2023. Full text

  10. ‘End of life: The development of palliative care at home, a priority, but a complex project,’ Globe World News. Posted online 12 February 2023. Full text

Education & Training

  1. ‘Implementation and evaluation of an end-of-life care education program for oncology nurses working in medical-surgical wards: A quasi-experimental study,’ Heliyon. Posted online 8 March 2023. Full text 

    Related:

    ‘Knowledge and attitude toward end-of-life care of nursing students after completing the Multi-Methods Teaching & Learning Palliative Care Nursing Course,’ Sustainability. Posted online 28 February 2023. Full text

  2. ‘Palliative care now a core requirement of key aged care training,’ Palliative Care Australia. Posted online 8 March 2023. Full text 

    Related:

    ‘Educational needs of nursing home staff: Does a needs-based palliative care course make a difference?’ BMJ Supportive & Palliative Care. Posted online 20 February 2023. Abstract

  3. ‘The need for improved end-of-life care medical education: Causes, consequences, and strategies for enhancement and integration,’ American Journal of Hospice & Palliative Medicine. Posted online 28 February 2023. Abstract (w. references)
  4. ‘Hurdle hopping: Collaborating to overcome challenges in palliative care education,’ Europe Association for Palliative Care. Posted online 28 February 2023. Full text
  5. ‘Taking care of who cares: Evaluation of a training program for home palliative care professionals,’ Palliative & Supportive Care. Posted online 28 February 2023. Full text
  6. ‘Death education for palliative psychology: The impact of a death education course for Italian university students,’ Behavioral Sciences. Posted online 16 February 2023. Full text
  7. ‘Are you talking about me? Patients' involvement in curriculum design and development,’ Science Talks. Posted online 9 February 2023. Full text
  8. ‘A systematic review of interprofessional palliative care education programs,’ Journal of Pain & Symptom Management. Posted online 1 February 2023. Abstract (w. references)
  9. ‘Pediatric Project ECHO® for Pain: Implementation and mixed methods evaluation of a virtual medical education program to support interprofessional pain management in children and youth,’ BMC Medical Education. Posted online 28 January 2023. Full text 

    Related:

    ‘Education and mentoring of specialist pediatric palliative care medical and nursing trainees: The Quality of Care Collaborative Australia,’ Advances in Medical Education & Practice. Posted online 26 January 2023. Full text

  10. ‘Teaching end-of-life care in speech-language pathology: A tutorial,’ Teaching & Learning in Communications Sciences & Disorders, 2023;7(1). Full Text

Essential Medicines

  1. ‘Access to controlled medicines for pain management in the WHO South-East Asia Region,’ World Health Organization. Posted online 28 February 2023. Download
  2. ‘The critical frontlines of drug policy in Africa,’ Modern Ghana. Posted online 26 February 2023. Full text

    Related:

    ‘Availability and use of essential opioid analgesics in Sub-Saharan Africa: A scoping review protocol,’ International Journal of Surgery Protocols. Posted online 1 February 2023. Full text

  3. ‘Bringing severe pain to an end,’ Dianova International. Posted online 24 February 2023. Full text 

    N.B. eHospice “commentary” on Dianova International article

  4. ‘Indian essential medicine list for children: Time to revisit,’ Cureus. Posted online 22 February 2023. Full text
  5. ‘Essential cancer medicines,’ Union for International Cancer Control. Posted online 15 February 2023. Full text
  6. ‘Study finds disparities in access to opioids for cancer pain at end of life,’ U.S. National Cancer Institute. Posted online 14 February 2023. Full text

    Related

    ‘Use of opioids for adults with pain from cancer or cancer treatment: American Society of Clinical Oncology Guideline,’ Journal of Clinical Oncology. 2023;41(4):914-930. Full text

  7. ‘The global gap in access to opioid analgesics for pain management: Why is this (still) a silent crisis?’ International Health Policies. Posted online 26 January 2023. Full text

Policy

  1. ‘Consequences of India’s population aging to its healthcare financing and provision,’ Journal of Medical Economics. Posted online 13 February 2023. Full text
  2. ‘Policy priorities for a well-prepared nursing home workforce,’ Public Policy & Aging Report. Posted online 8 February 2023. Full text
  3. ‘Updating international consensus on best practice in care of the dying: A Delphi study,’ Palliative Medicine. Posted online 3 February 2023. Full text

Research

  1. ‘Healthcare delivery research in older adults with cancer: A review of National Institutes of Health-funded projects,’ Journal of the American Geriatric Society. Posted online 10 March 2023. Full text
  2. ‘The 2023-2026 Hospice & Palliative Nurses Association research agenda,’ Journal of Hospice & Palliative Care Nursing. Posted online 27 February, 2023. Abstract
  3. ‘When research becomes practice: The concept of the therapeutic misconception and challenges to consent in clinical trials,’ Internal Medicine Journal. Posted online 23 February 2023. Full text
  4. ‘Research participation in palliative medicine – benefits and barriers for patients and families: Rapid review and thematic synthesis,’ BMJ Supportive & Palliative Care. Posted online 20 February 2023. Full text 

    Related:

    ‘Strategies and checklist for designing and conducting palliative care research with family carers: European Association for Palliative Care international expert elicitation study,’ Palliative Medicine, 2023;37(1):163-173. Abstract (w. references)

    N.B. eHospice “commentary” on Palliative Medicine article

  5. ‘What are the priorities in surgical palliative care research?’ The American Surgeon. Posted online 16 February 2023. Full text
  6. ‘CMAJ’s new guidance on the reporting of race and ethnicity in research articles,’ Canadian Medical Association Journal. Posted online 13 February 2023. Full text

Of Related Interest

  1. ‘End of life care during the COVID-19 pandemic: A qualitative study on the perspectives of nurses and nurse assistants,’ Nursing Open. Posted online 8 March 2023. Full text 

    Related:

    ‘The Lasting Impact of COVID-19 on Death, Dying and Bereavement,’ U.K. All-Party Parliamentary Group on Hospice and End-of-Life Care. Posted online 7 March 2023. Full text

  2. ‘Ad campaign results highlight need for greater investment in palliative care,’ Palliative Care Australia. Posted on eHospice 2 March 2023. Full text
  3. ‘The Institute for European Hospice Partnerships: Idea, vision, mission, and first steps of its development,’ Palliative Medicine in Practice. Posted online 17 February 2023. Full text
  4. ‘Service specifications for palliative and end-of-life care: Adults,’ National Health Service England. Posted online 26 January 2023. Download document
  5. ‘Service specifications for palliative and end-of-life care: Children and young people,’ National Health Service England. Posted online 26 January 2023. Download document

Call for Papers

  1. ‘Value-based care and high-value care,’ The Permanente Journal. Posted online 10 March 2023. Full text
  2. ‘Chronic disease in low-resource settings: Prevention and management throughout the continuum of care,’ International Journal of Environmental Research & Public Health. Posted online 17 February 2023. Full text
  3. ‘Spirituality in palliative care,’ BMC Palliative Care. Posted online 10 January 2023. Full text

Selected News Media Reports

  1. ‘Centers for Disease Control & Prevention new opioid guidelines are too little, too late for chronic pain patients, experts say,’ NBC News (U.S.). Posted online 13 March 2023. Full text 

    N.B. Download Centers for Disease Control & Prevention guidelines

  2. ‘Palliative care, only for one in four Italians,’ Breaking Latest News. Posted online 12 March 2023. Full Text
  3. ‘Giving the terminally ill a voice: The history of hospice care and its impact in California,’ Sacramento News & Review. (U.S.). Posted online 7 March 2023. Full text
  4. “‘It’s not just about dying”: Uganda’s pioneers of palliative care undaunted by huge challenges,’ The Guardian (U.K.) Posted online 6 March 2023. Full text
  5. ‘Elderly and vulnerable people are still being put on an end-of-life “death pathway,” hard-hitting report reveals – even though it was officially abolished almost a decade ago,’ The Daily Mail (U.K.). Posted online 4 March 2023. Full text 

    N.B. The report, ‘When end-of-life care goes wrong,’ was prepared by the Lords and Commons Family and Child Protection Group, a cross-party research and advisory group. Access report