2021; Volume 22, No 7, July
A Deeper Dive... into North and South America
By Genevieve Napier
IAHPC Programs Officer
In the past two issues, we highlighted the geographic breakdown of IAHPC memberships in Asia and Africa. This month, we bring you the numbers for North America, which accounts for 25 percent of IAHPC members, and South America, which accounts for 12 percent.
While each month the number of members changes, the percentages don’t vary a great deal.
In North America, 69% of memberships represent members in the United States. In South America, 50% of memberships represent members in Brazil (28%) and Colombia (22%).
Next month is the last in this series, where we do a deep dive into Europe.
Members’ Impact
Eric L. Krakauer
Eric L. Krakauer, MD, PhD, is lead author of three articles published in the June 2021 issue of JCO Global Oncology: “Cervical Cancer-Associated Suffering: Estimating the Palliative Care Needs of a Highly Vulnerable Population,” “Essential Package of Palliative Care for Women With Cervical Cancer: Responding to the Suffering of a Highly Vulnerable Population,” and “Augmented Package of Palliative Care for Women With Cervical Cancer: Responding to Refractory Suffering.” Some of the coauthors are also IAHPC members: Drs. Stephen Connor, Nahla Gafer, Quach Thanh Khanh, M.R. Rajagopal, and Dingle Spence.
The authors state that, “Women with cervical cancer, especially those with advanced disease, appear to experience suffering that is more prevalent, complex, and severe than that caused by other cancers and serious illnesses, and approximately 85% live in low- and middle-income countries where palliative care is rarely accessible.”
These articles report on the major types of cervical cancer and the prevalence, severity, and duration of suffering associated with the disease as a prerequisite to designing palliative care. The study convened a group of experienced experts in all aspects of care for women with cervical cancer, and from countries of all income levels, to create an essential package of palliative care for cervical cancer (EPPCCC), as well as an augmented EPPCCC for refractory suffering.
Dr. Luca Franchini
Dr. Silvia Varani
Lead author Dr. Luca Franchini, Dr. Silvia Varani, and Dr. Eduardo Bruera were among coauthors who published an article in the April issue of Palliative Medicine titled “Home palliative care professionals perception of challenges during the Covid-19 outbreak: A qualitative study.” The study investigates the essential role of home palliative care services during the first wave of the SARS-CoV-2 outbreak in Italy, seeking to better understand how home palliative care professionals were affected.
William Rosa
“A Virtual Coaching Workshop for a Nurse-Led Community-Based Palliative Care Team in Liberia, West Africa, to Promote Staff Well-Being During COVID-19” is an article, authored by Dr. William Rosa, published online in April in Nursing Education Perspectives. The article describes a project to improve the health of nurses affected by COVID-19. Discussions are underway to expand this educational coaching intervention in both East and West Africa.
If you have a recently published article that you wish to share with your IAHPC colleagues, please contact Genevieve Napier.
Members in This Month’s Newsletter
The IAHPC leadership would like to thank the many members who participated in stories and columns in this month’s newsletter.
Policy & Advocacy
- Dr. Zipporah Ali (Kenya), member since 2009, supported the Global Consensus-Based Palliative Care Definition, participated in the COVID-19 Briefing Notes, and served as an Advocacy Focal Group.
- Rose Kiwanuka (Uganda), member since 2013, participated in the COVID-19 Briefing Notes.
- Odette Spruijt (Australia), member since 2009, supported the Global Consensus-Based Palliative Care Definition and serves as an Advocacy Focal Point.
- Rachel Coghlan (Australia) has been a member since 2020.
- Monica Do Coutto Monni (Canada), a lifetime member, is the institutional representative for the Near North Palliative Care Network and serves as an Advocacy Focal Point.
Guest Columnist
- Mwate Joseph Chaila (Zambia), member since 2014, participated in the Opioid Price Watch, supported the Global Consensus-Based Palliative Care Definition, and serves as an Advocacy Focal Point.
- Abidan Chansa (Zambia), member since 2019, serves as an Advocacy Focal Point.
IAHPC News
- Jamila Boateng (Ghana), member since 2021, is the institutional representative for Hospice Africa Uganda.
- Ruth Esi Fosuah (Ghana), member since 2021, is the institutional representative for Hospice Africa Uganda.
- Vincent Namisi (Uganda), member since 2021, is the institutional representative for Hospice Africa Uganda.
Featured Story
- Hibah Osman (Lebanon), member since 2009, participated in the Opioid Price Watch, participated in the COVID-19 Briefing Notes, and translated and supported the Global Consensus-Based Palliative Care Definition.
Members’ Impact
- Eric L. Krakauer (USA) lifetime member and former IAHPC Board Member.
- Stephen Connor (USA), member since 2009, supported the Global Consensus-Based Palliative Care Definition, and participated in the COVID-19 Briefing Notes and survey.
- Nahla Gafer (Sudan), member since 2008, and participated in the Global Palliative Care Database pilot project.
- Quach Thanh Khanh (Vietnam), member since 2009, participated in the COVID-19 Briefing Notes.
- M.R. Rajagopal (India), a lifetime member, supported the Global Consensus-Based Palliative Care Definition, and participated in the COVID-19 Briefing Notes.
- Dingle Spence (Jamaica), member since 2009, supported the Global Consensus-Based Palliative Care Definition, and participated in the COVID-19 Briefing Notes.
- Luca Franchini (Italy), a lifetime member, is institutional representative for Fondazione ANT Italia Onlus.
- Silvia Varani (Italy), a lifetime members, is institutional representative for Fondazione ANT Italia Onlus.
- Eduardo Bruera (USA) is a lifetime member and former IAHPC Board Member.
- William Rosa (USA), member since 2020, participated in the COVID-19 Briefing Notes.
Links to IAHPC programs mentioned above: Global Consensus-Based Palliative Care Definition, COVID-19 Briefing Notes, Global Palliative Care Database, and Opioid Price Watch.
List of Members
A list of individuals who joined, or renewed their membership with, IAHPC during the past month.
Membership renewals
| Name | Country |
|---|---|
| Peter Hudson | Australia |
| Sayeda Quadir | Bangladesh |
| Carolina Neiva Guedes da Silva | Brazil |
| Zemilson Souza | Brazil |
| Edier Mauricio Arias | Colombia |
| Pati Dzotsenidze | Georgia |
| Amanpreet Kaur | India |
| Pallium India | India |
| Obangjungla Obangjungla | India |
| Sajeevan Kunivayalil | India |
| Fadi Abu-Farsakh | Jordan |
| Esther Nafula | Kenya |
| Kenya Hospices And Palliative Care Association (KEHPCA) | Kenya |
| Rohodora Del Rosario Ocampo | Philippines |
| Zodwa Sithole | South Africa |
| Enric Benito | Spain |
| Marisa Martin Rosello | Spain |
| Fernando G Chamath | Sri Lanka |
| Global Partners in Care | United States |
| Wisdom Muleya Munkombwe | Zambia |
New members
| Name | Country |
|---|---|
| Yi Wen Chan | Australia |
| Lorenna Santos Climaco | Brazil |
| Lucas Thiago Pereira Silva | Brazil |
| Mirian Moreira | Brazil |
| Nilqger Garcia | Chile |
| Carolina Angel | Colombia |
| Victoria Diehl | Costa Rica |
| Pranab Basu | India |
| Sindhu Hirekatur Manjunath | India |
| Arianti Arianti | Indonesia |
| Mobashshar HASSAN | Lesotho |
| N. Dennis Mwafulirwa | Malawi |
| Zee Nee Lim | Malaysia |
| Elvira Llaca | Mexico |
| Naxiely Audelia Santiago Sampe | Mexico |
| Agnes Bausa-Claudio | Philippines |
| Elsie Mugisha | South Africa |
| Ester Kibuuka | South Africa |
| Juliana Dercole D'Ercole | South Africa |
| Junaid Mohamed Vahed | South Africa |
| Maria Montserrat Perez Garcia | Spain |
| Gorret Kuria | United Kingdom |
| Heather Wood | United Kingdom |
See the full list of IAHPC members
