2021; Volume 22, No 3, March

Your Reasons for Joining the IAHPC Influence Our Programs

By Genevieve Napier
IAHPC Programs Director

For the past year, the IAHPC has included this question on our membership application: Why did you join? Your answers help us understand the needs of our members, and influence the type of programs we support.

You, our members, have identified three main reasons for joining the IAHPC: 1) networking/collaboration with peers, 2) access to resources and information, and 3) advocacy. Members made the following comments, arranged here by category:

Networking / Collaboration with Peers

Join a network and work with a international community.
Grow partnerships and professional partners that offer hospice.
Join in worldwide palliative care network.
The wonderful work you do and our desire to collaborate with you!
To build my network of hospice and palliative care practice in the international community.
To connect with many more palliative care workers across the world.

Access to resources and information

To get a deeper knowledge of palliative care services so as to better help those with life-limiting illnesses.
Desire to be kept informed of global developments within palliative care.
As a palliative provider, I wanted to learn more from the experts around the world.
Continuing knowledge.
Increase my knowldge and practice in palliative care.
To be able to access resources.

Advocacy

IAHPC is one of the big groups of palliative care advocates that nurtures learning and promotion of palliative care.
Interest in international access to palliative care.
My interests and expertise are developing more in the global hospice and palliative care movement.

When you renew your membership, please assist the IAHPC to determine how we can do more for you, our members.

Members’ Impact

You, our members, are IAHPC's most important and cherished resource. Members' Impact celebrates your successes; let us know about:

Your articles and books that have been published (in the medical literature)
Your research posters that have been disseminated
Your awards
Your successful initiatives, such as fundraising programs, workplace advances, online courses or presentations, etc.

Contact me, IAHPC Programs Officer Genevieve Napier, to tell spread the news of your achievement, or alert us to the achievement of another IAHPC member.

Members in This Month’s Newsletter

The IAHPC leadership would like to thank the many members who participated in stories and columns in this month’s newsletter.

Policy & Advocacy

Gulnara Kunirova, member since 2015, participated in the Opioid Price Watch.
Odette Sprujit, member since 2009, supported the Global Consensus-Based Palliative Care Definition.
Eddie Mwebesa has been a member since 2011.

News from IAHPC Institutional Members

Harmala Gupta, member since 2009, supported the Global Consensus-Based Palliative Care Definition and participated in the COVID-19 Briefing Notes.

Featured Story

Lukas Radbruch has been a member since 2008.

Lessons Learned

Tania Pastrana, member since 2010, translated and supported the Global Consensus-Based Palliative Care Definition, participated in the Opioid Price Watch, participated in the COVID-19 Briefing Notes and survey.

Media Watch

Barry R. Ashpole has been a member since 2018.

Links to IAHPC programs mentioned above: Global Consensus-Based Palliative Care Definition, COVID-19 Briefing Notes, Global Palliative Care Database, and Opioid Price Watch.

List of Members

A list of individuals who joined, or renewed their membership with, IAHPC during the past month.

Membership renewals

Name	Country
Artashes Tadevosyan	Armenia
Gabriela Sarmiento Brecher	Colombia
Fundacion Ammar Ayudando	Guatemala
Sanjay Dhiraaj	India
Hellen Kariuki	Kenya
Erendira Viceencio Rosas	Mexico
Kawubiri Wilberforce	Uganda
Octivia Evelyn Nazziwa	Uganda
Esther Walker	United Kingdom
Alison Ramsey	United States
Ronald Sand	United States

New members

Name	Country
Peter Moliner	Canada
Edna De La Hoz Suarez	Colombia
Anju Sharma	India
Anureet Kaur Gill	India
Asoke Chackalackal Mathew	India
Garima Agarwal	India
Jaskiran Kaur	India
K Radhakrishna Menon	India
Mandeep Kaur	India
Manmeet Kaur Gill	India
Neha Uppal	India
Rohit Arora	India
Sahiba Kukreja	India
Sukhjeet Kaur	India
Tanvi Shinde	India
Asia Pacific Hospice Palliative Care Network	Singapore
Hospice Africa Uganda	Uganda
Nienke Schouten	United Kingdom
Chris Bowman	United States
Ian Kwok	United States
Jessica Nutik Zitter	United States

See the full list of IAHPC members

Do you have any questions regarding membership issues?

Contact Ms. Genevieve Napier

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This Holiday Season

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How your gift supports the IAHPC mission

Achieved: $24,941 Goal: $30,000

83%

Education

Your gift funds the operational costs of our online courses taught by globally recognized experts who volunteer their time and provide educational resources relevant to palliative care topics. It also supports scholarships that enable palliative care workers to attend educational events and congresses, and allows us to maintain Pallipedia, the free, live, online dictionary.

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The goal of this pillar is to implement strategies, resources and tools that will improve the competencies of the global workforce for appropriate palliative care delivery. We have two programs under this pillar plus many other resources for our members.

Scholarship Program

Your membership helps us produce, and enables access for those with fewer resources, to the following:

Palliative Care in Neurological Conditions
Comprehensive Basic Pain Assessment and Management
Advanced Pain Assessment and Management
Comprehensive Symptom Assessment and Management
Advocacy for global, regional, and national advocacy for palliative care
Pallipedia: Free, online palliative care dictionary
Special Issue on Assisted Dying Practices by several authors
Some Notes for Physicians Contemplating a Career in Palliative and Person-Centered Care by Eduardo Bruera, MD
Euthanasia and Physician Assisted Suicide: Are they clinically necessary or desirable? by Dr. Roger Woodruff
How to Help our Patients in their Terminal Phase by Wilson Astudillo A. and Carmen Mendinueta A.
Cómo Ayudar a un Enfermo Terminal by Wilson Astudillo A. and Carmen Mendinueta A.
Palliative Care in the Developing World - Principles and Practice by Eduardo Bruera, Liliana De Lima, Roberto Wenk and William Farr

Advocacy

Your gift enables us to build and strengthen the partnerships that accelerate global, regional, and national advocacy for palliative care. We advocate for its integration into primary health care under universal health coverage and effective access to essential palliative care medicines and packages for people of all ages. Your gift supports our work to prepare delegates and participate in technical consultation meetings of the relevant UN organizations.

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The goal this pillar is the integration of palliative care into primary health care within the spectrum of universal coverage to improve access to adequate care for patients in need. We offer the following to our members:

Online Advocacy Course
Mentoring for advocacy to develop palliative care in your country
A chance to join IAHPC delegations to UN and WHO meetings
National association collaboration with IAHPC advocacy initiatives
A chance to apply for the Leadership Development Program (LEAD)

Your membership helps us produce and enables free access to the following resources:

IAHPC Advocacy Policy Briefs
Palliative Care Advocacy Why Does It Matter?
Documents on Human Rights and Access to Medicines and Care

Research

Your gift enables us to continue doing research that provides guidance and recommendations for action, based on responses from the global palliative care community. Such research includes our recent evaluation of the impact of euthanasia and assisted dying practices on palliative care workers and the use of essential medicines for palliative care. It also supports the costs of publications focused on research relevant to palliative care.

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The goal of this pillar is to design and implement projects that lead to the integration of palliative care into health policies, resolutions, and key documents. Our studies help us provide guidance and recommendations, and take action based on the responses from the global palliative care community.

Your membership enables you to participate in IAHPC projects such as the:

Global Palliative Care Database
Consensus-based definition of palliative care
Clinical use of tramadol
Opioid Price Watch
IAHPC List of Essential Practices in Palliative Care in English and Spanish
IAHPC Opioid Essential Prescription Package
IAHPC List of Essential Medicines for Palliative Care (in multiple languages)

Information dissemination

Your gift enables us to continue our in-depth reporting and book reviews in Pallinews, as well as media campaigns that raise awareness about the need to increase access to care and support for patients and families.

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The goal of this pillar is to create and publish positive stories and focused messaging, to support and advance the global palliative care movement.

Your membership allows us to make the following resources available free of charge to the palliative care community:

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