2014; Volume 15, No 9, September

Message from the Chair and Executive Director

Dear readers:

During the month of August many readers were on vacation, including ourselves. If you did, we hope you enjoyed the rest. We did!!

This month we have several interesting topics and reports in the NL including the policy article from Katherine Pettus and a featured article from Derek Doyle, on French hospices selling wine to patients.

Next month is our member’s recognition month. IAHPC benefits every day by the hard work of our members who are devoted to the advancement of hospice and palliative care worldwide. Members exemplify a continuing commitment to patient care, improving education and developing favorable policies consistent with our mission.

To celebrate our members’ month, IAHPC will be giving two prizes (two scholarships to the World Congress of the European Association for Palliative Care in Copenhagen, Denmark, in 2015). Prizes will be given in two categories: a) Recognizing member loyalty and b) Increasing our membership. This edition includes a copy of the announcement.

We are happy to announce the IAHPC grantees of Traveling Scholarships to the 20th International Congress in Palliative Care in Montreal later this month:

Oyeniran Ayodeji Olaolu, MD
Head of Hospice and Palliative care Unit
Institution LAUTECH Teaching Hospital
Osun State, Nigeria

Celeste Mariel Jerez, MD
Social Sciences Researcher
Institute for Clinical Effectiveness and Health Policy
Buenos Aires, Argentina

Kellen N Kimani, MBcH
PhD Student University of Edinburgh
Nairobi Kenya

Jose Mario Lopez Saca, MD
Palliative Care physician
Hospital Nacional "Dr. Juan Jose Fernandez
San Salvador, El Salvador

Aditya Manna
Volunteer
Narikeldaha Prayas
Purba Medinipur Tamluuk, India

Ivone Martin Hernandez, MD
Researcher/Professor/Member of the Work Group of Neurodegenerative diseases
Institute of Neurology and Neurosurgery
La Habana, Cuba

Sarah Nandaula, RN
Paediatrics Palliative Care Nurse
Hospice Africa Uganda
Kampala, Uganda

Jean Luc Nkurikiyimfura
Head of HIV Clinic / Palliative Care Team Leader
Kigali University Teaching Hospital
Kigali, Rwanda

Layth Yahya Mula-Hussain, MB ChB, CCI, MSc, JB, EF.
Consultant Radiation Oncologist, Zhianawa Cancer Center, Sulaymaniyah
Director, Radiation Oncology Program, Kurdistan Board for Medical Specialties, Erbil
Qirga, Sulaymaniyah - KRG, Iraq

Luciano Gabriel Uzal, MD
Social Sciences Researcher
Institute for Clinical Effectiveness and Health Policy
Buenos Aires, Argentina

Tania Pastrana, MD
Research scientist
Medical Faculty, RWTH Aachen University
Aachen, Germany

Congratulations to the grantees for their selection – we hope that their trips will help advance palliative care and have the impact they are aiming for. We look forward to their reports after their returns.

Many thanks to our generous donors who make these programs happen and enable us to continue helping the development of palliative care. Donations enable us to continue supporting extraordinary efforts by individuals in developing countries who are working very hard to promote and develop hospice and palliative care around the globe. A big piece of our support comes from public donations and we have started our annual fundraising campaign. Several of you will receive a letter in the email – please consider donating and supporting the work we do. For additional information on how to help us, please visit the donation section in our website.

Board elections: Later this month we will be sending the announcement for those who wish to nominate candidates to our board. We hope that many of you will respond to our invitation and be part of this great organization.

Until next month,

Lukas Radbruch, MD
Chair, Board of Directors

Liliana De Lima, MHA
Executive Director

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How your gift supports the IAHPC mission

Achieved: $24,941 Goal: $30,000

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Education

Your gift funds the operational costs of our online courses taught by globally recognized experts who volunteer their time and provide educational resources relevant to palliative care topics. It also supports scholarships that enable palliative care workers to attend educational events and congresses, and allows us to maintain Pallipedia, the free, live, online dictionary.

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The goal of this pillar is to implement strategies, resources and tools that will improve the competencies of the global workforce for appropriate palliative care delivery. We have two programs under this pillar plus many other resources for our members.

Scholarship Program

Your membership helps us produce, and enables access for those with fewer resources, to the following:

Palliative Care in Neurological Conditions
Comprehensive Basic Pain Assessment and Management
Advanced Pain Assessment and Management
Comprehensive Symptom Assessment and Management
Advocacy for global, regional, and national advocacy for palliative care
Pallipedia: Free, online palliative care dictionary
Special Issue on Assisted Dying Practices by several authors
Some Notes for Physicians Contemplating a Career in Palliative and Person-Centered Care by Eduardo Bruera, MD
Euthanasia and Physician Assisted Suicide: Are they clinically necessary or desirable? by Dr. Roger Woodruff
How to Help our Patients in their Terminal Phase by Wilson Astudillo A. and Carmen Mendinueta A.
Cómo Ayudar a un Enfermo Terminal by Wilson Astudillo A. and Carmen Mendinueta A.
Palliative Care in the Developing World - Principles and Practice by Eduardo Bruera, Liliana De Lima, Roberto Wenk and William Farr

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Your gift enables us to build and strengthen the partnerships that accelerate global, regional, and national advocacy for palliative care. We advocate for its integration into primary health care under universal health coverage and effective access to essential palliative care medicines and packages for people of all ages. Your gift supports our work to prepare delegates and participate in technical consultation meetings of the relevant UN organizations.

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The goal this pillar is the integration of palliative care into primary health care within the spectrum of universal coverage to improve access to adequate care for patients in need. We offer the following to our members:

Online Advocacy Course
Mentoring for advocacy to develop palliative care in your country
A chance to join IAHPC delegations to UN and WHO meetings
National association collaboration with IAHPC advocacy initiatives
A chance to apply for the Leadership Development Program (LEAD)

Your membership helps us produce and enables free access to the following resources:

IAHPC Advocacy Policy Briefs
Palliative Care Advocacy Why Does It Matter?
Documents on Human Rights and Access to Medicines and Care

Research

Your gift enables us to continue doing research that provides guidance and recommendations for action, based on responses from the global palliative care community. Such research includes our recent evaluation of the impact of euthanasia and assisted dying practices on palliative care workers and the use of essential medicines for palliative care. It also supports the costs of publications focused on research relevant to palliative care.

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The goal of this pillar is to design and implement projects that lead to the integration of palliative care into health policies, resolutions, and key documents. Our studies help us provide guidance and recommendations, and take action based on the responses from the global palliative care community.

Your membership enables you to participate in IAHPC projects such as the:

Global Palliative Care Database
Consensus-based definition of palliative care
Clinical use of tramadol
Opioid Price Watch
IAHPC List of Essential Practices in Palliative Care in English and Spanish
IAHPC Opioid Essential Prescription Package
IAHPC List of Essential Medicines for Palliative Care (in multiple languages)

Information dissemination

Your gift enables us to continue our in-depth reporting and book reviews in Pallinews, as well as media campaigns that raise awareness about the need to increase access to care and support for patients and families.

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